Goodbye Miss Robyn

Well, today was our last day of PT with Robyn and I am a mix of emotions.  I knew it was coming, but I thought that we would have a longer transition time from her to our new PT.  I’m sad to be losing a person who started this journey with us, and I’m nervous to be with a PT so new to the system.  I keep telling myself that she will be great, but I still worry.  I am a worrier by nature, so it really shouldn’t be a surprise that I’m not comfortable with this change.  I have absolutely no reason to feel that Sarah can’t be just as great for Elena, I just hate change.  I keep telling myself that change is good for everyone and it isn’t healthy to be so complacent with the way things are but my heart is having a hard time believing it.

Elena has been on a three-day fever binge, so the lack of sleep isn’t helping my emotions either.  We went in to see the pediatrician today and have ruled out ear infection, pneumonia, and strep so right now the doctor just thinks it is some sort of viral infection.  Hopefully the fever will break and things will go back to normal soon — because I’m not sure how many more sleepless nights I can do.

On a happy note, we don’t have to go back to see the cardiologist for 1 1/2 years, which is fabulous.  The hole in her heart hasn’t gotten any smaller, but the doctor says that it isn’t effecting her development right now.  She is gaining weight and able to get through PT without too much exhaustion.  She will still be more tired than most babies, but there aren’t any restrictions on her activity.  We were also told that because the hole hasn’t made any signs of improving and because she has Down syndrome, the likelihood of the hole closing is slim.  But you know what, it is still a possibility and I’m not going to stop praying that it will close on its own.  I’m in a good place right now, and I have 1 1/2 years to not worry about it, doctor’s orders.

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~ by triumphsforelena on March 4, 2011.

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