World Down Syndrome Day

Nine months ago I never knew this day ever existed.  I have spent a lot of time thinking about exactly what it even means to me, and here is what I have come up with.  First off, to me this day means a day of acceptance.  We are all so very much alike and yet, we are all so very different.  I want for my children, not just Elena, to be accepted into this world.  I think that this is true for all parents, whether their child has been born with an extra chromosome or not.  I will set goals for my children and I will push them to meet those goals.  In return, I hope that they will learn to set their own goals and push to meet them without me.

I remember hearing that Elena had Down syndrome and feeling guilty because I thought I had made this happen.  I remember being nervous for Caden and Ava to come and meet her for the first time because I didn’t want them to see their sister as anything less than the perfect baby I had promised.  I want more than anything for any new parent who receives this news to know that their child is perfect, because all children are.  We are blessed to have Elena in our lives, and while I knew that from the moment I held her in my arms, I wish that I would have known that everything was going to be ok and that I didn’t need to be so scared.

I counted my blessings today, and I hope that as Elena grows she will be welcomed by everyone she meets.  I know I can’t cure discrimination and all the hurtful things people say but I do know that I can teach my children to not be that way.  I have said things in the past that were not nice and I now realize how much hurt words can cause.  If anybody takes anything from this blog, take this.  Be careful what you say because words have the power to hurt people in ways we can not always understand.  I will strive to teach my children this lesson; to welcome people and accept their differences, because deep down we are all unique and we need to celebrate that.  Be your own person.

I guess what all my soapbox preaching boils down to is that my kids are special to me, as your’s are to you, and we need to work together to make this the type of world we want them to grow up in.  Children follow our lead, so lets show them the type of people we want them to be.  I am not perfect, far from it, but this last 9 months have helped me to see things from a new perspective.  I love my kids, and while this day is important to bring awareness and acceptance; it isn’t just about a day, it’s about a way of life.

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~ by triumphsforelena on March 21, 2011.

One Response to “World Down Syndrome Day”

  1. That was absolutely beautiful, and by the end, I was in tears. You are so, so very right in each and every thing that you said.. It is up to all parents, and even them, themselves– to stop the name calling.. the staring.. the whispers. We are all human beings.. all made up of the same things, no matter your race, religion, class or size, physical impairment or disability. Its time we all start making this world a better place. Your children are beautiful, and know that your blog really effected me– Beautifully written.
    You’re such a great person and no matter what, your kids will grow up knows that they have the best Mommy in the world.
    *hugs*

    Julie

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